Imagine watching someone you love slowly lose the ability to do things they’ve done their entire life. You step in to help. At first, it’s the little things. But as time passes, the responsibilities grow. You’re the caregiver, the problem solver, the emotional support, and sometimes the person holding everything together. But there’s one question that too often goes unanswered: Who’s taking care of you?
In recognition of National Family Caregivers Month, Late Night Health host Mark Alyn welcomes John Lehr, president and CEO of the Parkinson’s Foundation, and Tom, a longtime Parkinson’s care partner, for an important conversation about the challenges of caregiving and why caregivers must make their own health a priority.
Parkinson’s is a progressive neurological disease, meaning symptoms generally worsen over time. As the disease advances, the responsibilities of caregivers often increase, creating physical and emotional demands that can become overwhelming.
Tom knows this firsthand. His partner was diagnosed with young-onset Parkinson’s approximately 20 years ago, while in his early 40s. Although the disease progressed slowly, the past five or six years have brought greater caregiving responsibilities.
Tom has learned an important lesson: You cannot do everything yourself.
He makes time for meditation, outdoor activities, and playing pickleball several times a week. Just as importantly, he has developed a support network of friends who can help with errands or provide relief when needed.
Lehr emphasizes that caregivers frequently overlook their own well-being. Mark compares caregiving to the familiar airline safety instruction: Put on your own oxygen mask before helping someone else. The message is simple. Taking care of yourself isn’t selfish; it’s essential.
The conversation also explores encouraging developments in Parkinson’s research. While there is currently no cure on the horizon, Lehr discusses emerging treatments, including a potential once-daily medication, and the importance of exercise, nutrition, sleep, and appropriate medical care in managing symptoms.
Mark also highlights boxing programs designed for people with Parkinson’s, which can provide physical activity while helping participants develop new movement skills.
Throughout the interview, one message stands out: No caregiver should feel they must face Parkinson’s alone.
The Parkinson’s Foundation offers educational materials, community resources, and a toll-free helpline staffed by professionals knowledgeable about Parkinson’s care.
Whether you’re caring for a spouse, parent, partner, or friend, this conversation offers practical advice, encouragement, and a reminder that your health matters, too.
For more information Visit Parkinson.org or call the Parkinson’s Foundation helpline at 1-800-4PD-INFO (1-800-473-4636)
Listen to the discussion here: